Social networks and secondary health conditions: The critical secondary team for individuals with spinal cord injury
Identifieur interne : 000019 ( Canada/Analysis ); précédent : 000018; suivant : 000020Social networks and secondary health conditions: The critical secondary team for individuals with spinal cord injury
Auteurs : Sara J. T. Guilcher [Canada] ; Tiziana Casciaro [Canada] ; Louise Lemieux-Charles [Canada] ; Catharine Craven [Canada] ; Mary Ann Mccoll [Canada] ; Susan B. Jaglal [Canada]Source :
- The Journal of Spinal Cord Medicine [ 1079-0268 ] ; 2012.
Abstract
To describe the structure of informal networks for individuals with spinal cord injury (SCI) living in the community, to understand the quality of relationship of informal networks, and to understand the role of informal networks in the prevention and management of secondary health conditions (SHCs).
Mixed-method descriptive study.
Ontario, Canada
Community-dwelling adults with an SCI living in Ontario
The Arizona Social Support Interview Survey was used to measure social networks. Participants were asked the following open-ended questions: (1) What have been your experiences with your health care in the community? (2) What have been your experiences with care related to prevention and/or management of SHCs?, (3)What has been the role of your informal social networks (friends/family) related to SHCs?
Fourteen key informant interviews were conducted (6 men, 8 women). The overall median for available informal networks was 11.0 persons (range 3–19). The informal network engaged in the following roles: (1) advice/validating concerns; (2) knowledge brokers; (3) advocacy; (4) preventing SHCs; (5) assisting with finances; and (6) managing SHCs. Participants described their informal networks as a “secondary team”; a critical and essential force in dealing with SHCs.
While networks are smaller for persons with SCI compared with the general population, these ties seems to be strong, which is essential when the roles involve a level of trust, certainty, tacit knowledge, and flexibility. These informal networks serve as essential key players in filling the gaps that exist within the formal health care system.
Url:
DOI: 10.1179/2045772312Y.0000000035
PubMed: 23031170
PubMed Central: 3459562
Affiliations:
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T." last="Guilcher">Sara J. T. Guilcher</name><affiliation wicri:level="4"><nlm:aff id="af1">Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Casciaro, Tiziana" sort="Casciaro, Tiziana" uniqKey="Casciaro T" first="Tiziana" last="Casciaro">Tiziana Casciaro</name><affiliation wicri:level="4"><nlm:aff id="af2">Rotman School of Management, University of Toronto, Toronto, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Rotman School of Management, University of Toronto, Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Lemieux Charles, Louise" sort="Lemieux Charles, Louise" uniqKey="Lemieux Charles L" first="Louise" last="Lemieux-Charles">Louise Lemieux-Charles</name><affiliation wicri:level="4"><nlm:aff id="af1">Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Craven, Catharine" sort="Craven, Catharine" uniqKey="Craven C" first="Catharine" last="Craven">Catharine Craven</name><affiliation wicri:level="4"><nlm:aff id="af3">Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada; Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada; and Department of Medicine, University of Toronto, Toronto, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada; Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada; and Department of Medicine, University of Toronto, Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author><author><name sortKey="Mccoll, Mary Ann" sort="Mccoll, Mary Ann" uniqKey="Mccoll M" first="Mary Ann" last="Mccoll">Mary Ann Mccoll</name><affiliation wicri:level="1"><nlm:aff id="af4">Centre for Health Services and Policy Research, Queen's University, Kingston, Ontario, Canada; and Department of Community Health and Epidemiology and School of Rehabilitaion Therapy, Queen's University, Kingston, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Centre for Health Services and Policy Research, Queen's University, Kingston, Ontario, Canada; and Department of Community Health and Epidemiology and School of Rehabilitaion Therapy, Queen's University, Kingston, Ontario</wicri:regionArea><wicri:noRegion>Ontario</wicri:noRegion></affiliation></author><author><name sortKey="Jaglal, Susan B" sort="Jaglal, Susan B" uniqKey="Jaglal S" first="Susan B." last="Jaglal">Susan B. Jaglal</name><affiliation wicri:level="4"><nlm:aff id="af5">Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada; Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada; Graduate Department of Rehabilitation Science, University of Toronto, Toronto, Ontario, Canada; and Department of Physical Therapy, University of Toronto, Toronto, Ontario, Canada</nlm:aff><country xml:lang="fr">Canada</country><wicri:regionArea>Institute of Health, Policy, Management & Evaluation, University of Toronto, Toronto, Ontario, Canada; Toronto Rehabilitation Institute, University Health Network, Toronto, Ontario, Canada; Graduate Department of Rehabilitation Science, University of Toronto, Toronto, Ontario, Canada; and Department of Physical Therapy, University of Toronto, Toronto, Ontario</wicri:regionArea><orgName type="university">Université de Toronto</orgName><placeName><settlement type="city">Toronto</settlement><region type="state">Ontario</region></placeName></affiliation></author></analytic><series><title level="j">The Journal of Spinal Cord Medicine</title><idno type="ISSN">1079-0268</idno><idno type="eISSN">2045-7723</idno><imprint><date when="2012">2012</date></imprint></series></biblStruct></sourceDesc></fileDesc><profileDesc><textClass></textClass></profileDesc></teiHeader><front><div type="abstract" xml:lang="en"><sec><title>Objectives</title><p>To describe the structure of informal networks for individuals with spinal cord injury (SCI) living in the community, to understand the quality of relationship of informal networks, and to understand the role of informal networks in the prevention and management of secondary health conditions (SHCs).</p></sec><sec><title>Design</title><p>Mixed-method descriptive study.</p></sec><sec><title>Setting</title><p>Ontario, Canada</p></sec><sec><title>Participants</title><p>Community-dwelling adults with an SCI living in Ontario</p></sec><sec><title>Interventions/methods</title><p>The Arizona Social Support Interview Survey was used to measure social networks. Participants were asked the following open-ended questions: (1) What have been your experiences with your health care in the community? (2) What have been your experiences with care related to prevention and/or management of SHCs?, (3)What has been the role of your informal social networks (friends/family) related to SHCs?</p></sec><sec><title>Results</title><p>Fourteen key informant interviews were conducted (6 men, 8 women). The overall median for available informal networks was 11.0 persons (range 3–19). The informal network engaged in the following roles: (1) advice/validating concerns; (2) knowledge brokers; (3) advocacy; (4) preventing SHCs; (5) assisting with finances; and (6) managing SHCs. Participants described their informal networks as a “secondary team”; a critical and essential force in dealing with SHCs.</p></sec><sec><title>Conclusions</title><p>While networks are smaller for persons with SCI compared with the general population, these ties seems to be strong, which is essential when the roles involve a level of trust, certainty, tacit knowledge, and flexibility. These informal networks serve as essential key players in filling the gaps that exist within the formal health care system.</p></sec></div></front><back><div1 type="bibliography"><listBibl><biblStruct><analytic><author><name sortKey="Farry, A" uniqKey="Farry A">A Farry</name></author><author><name sortKey="Baxter, D" uniqKey="Baxter D">D Baxter</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Walker, J" uniqKey="Walker J">J Walker</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Couris, Cm" uniqKey="Couris C">CM Couris</name></author><author><name sortKey="Guilcher, Sjt" uniqKey="Guilcher S">SJT Guilcher</name></author><author><name sortKey="Munce, Sep" uniqKey="Munce S">SEP Munce</name></author><author><name sortKey="Fung, K" uniqKey="Fung K">K Fung</name></author><author><name sortKey="Craven, Bc" uniqKey="Craven B">BC Craven</name></author><author><name sortKey="Verrier, M" uniqKey="Verrier M">M 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Knoll</name></author><author><name sortKey="Johnson, Jl" uniqKey="Johnson J">JL Johnson</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="Meade, M" uniqKey="Meade M">M Meade</name></author><author><name sortKey="Carr, L" uniqKey="Carr L">L Carr</name></author><author><name sortKey="Ellenbogen, P" uniqKey="Ellenbogen P">P Ellenbogen</name></author><author><name sortKey="Barrett, K" uniqKey="Barrett K">K Barrett</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Post, Mw" uniqKey="Post M">MW Post</name></author><author><name sortKey="Bloemen, J" uniqKey="Bloemen J">J Bloemen</name></author><author><name sortKey="De Witte, Lp" uniqKey="De Witte L">LP de Witte</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Dickson, A" uniqKey="Dickson A">A Dickson</name></author><author><name sortKey="O Brien, G" uniqKey="O Brien G">G O'Brien</name></author><author><name sortKey="Ward, R" uniqKey="Ward R">R Ward</name></author><author><name sortKey="Allan, D" uniqKey="Allan D">D Allan</name></author><author><name sortKey="O Carroll, R" uniqKey="O Carroll R">R O'Carroll</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Boschen, Ka" uniqKey="Boschen K">KA Boschen</name></author><author><name sortKey="Tonack, M" uniqKey="Tonack M">M Tonack</name></author><author><name sortKey="Gargaro, J" uniqKey="Gargaro J">J Gargaro</name></author></analytic></biblStruct><biblStruct><analytic><author><name sortKey="Post, Mwm" uniqKey="Post M">MWM Post</name></author><author><name sortKey="Ros, Wjg" uniqKey="Ros W">WJG Ros</name></author><author><name sortKey="Schrijvers, Ajp" uniqKey="Schrijvers A">AJP Schrijvers</name></author></analytic></biblStruct><biblStruct></biblStruct><biblStruct><analytic><author><name sortKey="New, A" uniqKey="New A">A New</name></author></analytic></biblStruct></listBibl></div1></back></TEI><affiliations><list><country><li>Canada</li></country><region><li>Ontario</li></region><settlement><li>Toronto</li></settlement><orgName><li>Université de Toronto</li></orgName></list><tree><country name="Canada"><region name="Ontario"><name sortKey="Guilcher, Sara J T" sort="Guilcher, Sara J T" uniqKey="Guilcher S" first="Sara J. T." last="Guilcher">Sara J. T. Guilcher</name></region><name sortKey="Casciaro, Tiziana" sort="Casciaro, Tiziana" uniqKey="Casciaro T" first="Tiziana" last="Casciaro">Tiziana Casciaro</name><name sortKey="Craven, Catharine" sort="Craven, Catharine" uniqKey="Craven C" first="Catharine" last="Craven">Catharine Craven</name><name sortKey="Jaglal, Susan B" sort="Jaglal, Susan B" uniqKey="Jaglal S" first="Susan B." last="Jaglal">Susan B. Jaglal</name><name sortKey="Lemieux Charles, Louise" sort="Lemieux Charles, Louise" uniqKey="Lemieux Charles L" first="Louise" last="Lemieux-Charles">Louise Lemieux-Charles</name><name sortKey="Mccoll, Mary Ann" sort="Mccoll, Mary Ann" uniqKey="Mccoll M" first="Mary Ann" last="Mccoll">Mary Ann Mccoll</name></country></tree></affiliations></record>Pour manipuler ce document sous Unix (Dilib)
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